This Saturday has been globally designated “Rare Disease Day.”
The purpose: “to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.”
My son is one of those 30 million Americans, as is the youngest daughter of a friend and former colleague. You might be surprised to learn which diseases are considered rare, and who you know that fits into this category.
From our family to yours: Please take a moment Saturday (or sooner) to become more familiar with this special category of diseases — and if you’re so inclined, make a donation, no matter how small, to NORD, the National Organization for Rare Disorders.
Thanks.
PS — Way back in 1983, those suffering from rare disorders benefited from what is often discussed but rarely seen today: bipartisan cooperation.