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Living With Cancer (Guest Voice)

Carr180.jpgLiving with Cancer
by Martha Randolph Carr

I am a second stage, Clark Level IV, and an in situ first stage, survivor of melanoma and I’m living with cancer. I want to get that out right up front because the idea of living with cancer doesn’t regularly make the news, especially when talking about melanoma.

Melanoma is the fastest growing cancer in America and is second only to leukemia in killing people of working age. You are equally as likely to get it if you’re twenty or if you’re like me and just turned fifty years old. It hits all age groups, including teenagers, equally. The main causes of this cancer are getting burned in the sun, tanning beds and family history.

While fair skinned people have a greater risk, mostly from burning in the sun, having darker skin is not a guarantee. Bob Marley, who was from Jamaica and dark skinned, died of melanoma at the age of 36. The small cancer that took his life was found on his toe.

Melanoma is found most often in women on the arms and legs and in men on the trunk but as Marley’s case shows the entire body needs to be checked. Getting an all-over body check that includes even the scalp, should become an annual routine visit to a qualified dermatologist for everyone.

My first cancer looked like a perfectly round, dark mole on the left side of my left knee. It was about the size of a dime, which was what got me to go have it checked. If I had waited just a few more months it may have cost me my life.

If you have a mole that’s larger than the eraser on the end of a pencil, has changed color or size, has a halo of color around it or is cracked or bleeding go to a doctor today and get it biopsied. Right now, catching melanoma early is the best chance anyone has of stopping the cancer from spreading.

However, for anyone who is facing melanoma and needs a few words of encouragement, there are also people out here in America who are confounding the doctors and beating the odds. I am happy to say I am one of them.

Dr. Jeffrey Wayne, my great oncologist at Northwestern Medical Faculty Foundation here in Chicago was as relieved and surprised as I was to find that the cancer on my leg did not show itself in my sentinel node, which acts as a kind of main filter to the rest of the body. Even better, recent tests at my six month mark continued to show the same results. Just for today, I’m cancer free.

There are lots of others in the US who are even at Stage three and Stage four and are still here, despite the predictions. They are all trying various medical treatments, including surgery and have lived beyond the expectations by years. No one can explain why but sometimes all you need to know if you’re a survivor like me, is that we exist.

More survivors write to me all the time to share their stories and offer words of encouragement or look for someone else to join in their continued prayers for recovery.

The second cancer was found on my chin by my oncologist dermatologist and researcher at Northwestern, Dr. Pedram Gerami. He has the most remarkable way of talking about our expected life-long friendship where we get reacquainted every three months for years to come. He told me on my first visit when the second, unrelated early-stage cancer was found, that he had a lot of patients just like me who had been seeing him for years.

More than any other words spoken to me during all of this, those gave me comfort because Dr. Gerami always speaks to me about living with cancer and not about preventing my early death. It’s a subtle thing but makes the difference. He joins me in believing for the best.

Recently, the New York Times published a series of articles on a new drug trial for PLX4032 at the University of Pennsylvania in the treatment of late stage skin cancer. Melanoma has been remarkably resistant to previous drug trials showing little or no change in tumors or the speed at which they spread. This new drug has shown some mixed results but the glimmers of success can shed light on what to try next.

The NY Times article ended on a sour note with the drug suddenly starting to fail and most of the people featured dying, leaving the impression that for most of us that’s what awaits, and soon. However, there are survivors, like me, who have gone back to living and we’re here, if you need someone to talk to. Go get checked everyone.

If you’d like to donate to melanoma research at Northwestern Memorial Hospital and help find a cure go to www.LiveYourBigAdventure.com. Email Martha at: Martha@caglecartoons.com. ©2010 Martha Randolph Carr. Martha’s column is distributed exclusively by Cagle Cartoons Inc. newspaper syndicate — and it is licensed to run on TMV in full.



3 Responses to “Living With Cancer (Guest Voice)”

  1. DLS says:

    I wish you well, Martha.

    This thread introduces a lot of issues :

    1. Many people remain ignorant or unaware of the basics. What are we supposed to do, have even more Ad Countil or other totalitarian-ish commercials on the airwaves pestering people to get screened for various chronic and important acute diseases?

    2. Preventive care is great in theory but many things, including screenings, aren't always cost-effective. It's no panacea.

    3. Cancer and AIDS patients are the best-known health insurance “high-risk pool” group. States are facing problems with the costs of these.

    4. The rest of us with pre-existing conditions or an “adverse medical history” have traditionally relied on the individual health insurance market. The individual market is the most problem-ridden, newsworthy (as in, bad news), reform-needed part of the market (though high-risk pool people might feel neglected in reading this). This has been neglected in this year's rush to do much more with health care “reform.”

  2. archangel says:

    Beautiful mi Martita (Martha), and thank you. Live long and strong. I will pray just that for you, for us all. Your candidness and info will be vitamins for many. Hang in there

    Dr.E

  3. emilymcauliffe says:

    Thanks for the inspirational story Martha. Many of the melanoma stories I read are not happy ones as I am sure you know. I actually have compiled some of these devastating stories on my blog because there are just so many young people with melanoma who are dying and I want people to understand.

    My 42 year old husband is Stage IIIa. We are educated people and still didn't understand the severity of this cancer even when we got diagnosis from the dermatologist. If we didn't have insurance, I can assure you that my husband might be dead or dying (and we would be bankrupt) as I write this six months after diagnosis. But thank god we have a great doctors and he is doing very well with his latest scans showing no evidence of disease.

    Again, thank you for sharing your story! It gives me hope.

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